Privacy Policy
Privacy Policy
Effective Date: September 2, 2026
The Smilo Foundation, Inc. ("we," "our," or "us") is committed to protecting your privacy. This Privacy Policy explains how we collect, use, disclose, and safeguard your information when you visit smilofoundation.org, use Smilo Compass or our other services, or communicate with us.
By using our website or submitting information to us, you consent to the practices described in this Privacy Policy.
1. Information We Collect
We may collect the following categories of information:
Personal Information
Name
Email address
Phone number
Mailing address
Information submitted through forms, applications, waitlists, intake forms, or support requests
Health-Related Information (If Voluntarily Provided)
Medical records
Medical history
Diagnosis information
Treatment history
Genomic or testing information
Care-related information you choose to share
By voluntarily submitting health-related information, you explicitly consent to our collection, use, storage, and processing of that information as described in this Privacy Policy. Submitted medical records may contain information that identifies you, including your name, date of birth, medical record number, healthcare provider information, or other identifiers.
Payment Information
Donation and payment transactions may be processed through third-party payment providers. We do not store complete payment card information on our servers.
Automatically Collected Information
We may automatically collect certain technical and usage information, including:
IP address
Browser type
Device information
Pages visited
Referral sources
Cookies and similar tracking technologies
2. How We Use Your Information
We may use information we collect to:
Respond to inquiries and provide support
Review requests for assistance or services
Communicate updates, educational content, resources, or opportunities
Process donations and transactions
Improve our website, services, and user experience
Maintain security and prevent fraud
Develop, train, test, improve, and enhance technology tools, educational resources, and artificial intelligence systems, including Smilo Compass
Conduct cancer research, analytics, reporting, and operational activities
Comply with legal obligations
3. Sharing and Disclosure of Information
We do not sell personal information or health-related information.
We may share identifiable information with:
Trusted service providers and vendors that help us operate our systems, under confidentiality agreements
Website hosting and technology providers
Donation and payment processors
Analytics and security providers
Professional advisors and consultants
Medical or advisory professionals with your consent when relevant to your request
Government authorities or legal entities if required by law
We may also share aggregated, anonymized, or de-identified information that cannot reasonably identify an individual for purposes including:
Cancer research
Analytics
Educational initiatives
Platform improvement
Artificial intelligence and machine learning development
Partnerships and collaborations
Reporting and operational purposes
4. Smilo Compass, Artificial Intelligence & Technology Tools
Smilo Compass is a tool developed by The Smilo Foundation to help patients and caregivers understand cancer treatment and clinical trial options. Smilo Compass and certain other services or tools we offer may utilize artificial intelligence, automated technologies, or third-party technology platforms to help organize information, generate educational insights, improve user experience, or support service delivery.
Information submitted through our services, including uploaded medical records, may be used in identifiable and de-identified form to develop, train, test, and improve these tools and technologies consistent with this Privacy Policy and applicable law.
Smilo Compass and our other tools provide educational information only. They do not provide medical advice, diagnosis, or treatment, and using them does not create a patient or healthcare provider relationship with The Smilo Foundation. Always consult a qualified healthcare provider about your care.
5. Health Information and HIPAA
The Smilo Foundation is generally not a HIPAA-covered entity, and information submitted through this website may not be subject to HIPAA protections unless otherwise expressly stated.
Please only submit health information that you are comfortable sharing and that is needed for the service you are requesting. If you are submitting records on behalf of another person, you confirm that you are that person's parent, legal guardian, or authorized representative and have the right to share them.
6. International Users and Data Transfers
Our systems and service providers are located in the United States. If you access our services from outside the United States, your information, including any health-related information you submit, will be transferred to, stored, and processed in the United States, where privacy laws may differ from those in your country. By submitting information to us, you consent to this transfer.
7. Data Retention
We retain personal and health-related information only for as long as reasonably necessary to fulfill the purposes described in this Privacy Policy, operate and improve Smilo Compass, and meet applicable legal, regulatory, security, and operational requirements.
Retention periods may vary depending on the type of information and the purpose for which it was collected. When information is no longer reasonably necessary, we may delete, anonymize, or securely dispose of it, subject to applicable law and legitimate legal or operational requirements.
8. Data Security
We use reasonable administrative, technical, and organizational safeguards designed to help protect your information. However, no method of transmission over the internet or electronic storage system can be guaranteed to be completely secure, and we cannot guarantee absolute security.
9. Cookies & Tracking Technologies
We may use cookies, analytics tools, pixels, and similar technologies to:
Improve website functionality
Analyze traffic and usage trends
Personalize user experience
Enhance security and performance
You may adjust your browser settings to refuse cookies; however, some portions of the website may not function properly.
10. Third-Party Services
Our website may integrate or utilize third-party services, including:
Donation platforms
Analytics providers
Scheduling or communication tools
Spam prevention services (such as Google reCAPTCHA)
Embedded content or social media tools
These third parties may collect information in accordance with their own privacy policies.
11. Your Rights & Choices
Depending on your location and applicable law, you may have the right to:
Request access to personal information we maintain about you
Request corrections or updates
Request deletion of your information
Withdraw consent to our processing of your health-related information
Opt out of certain communications
To make a request, please contact us using the information below.
12. Children's Privacy
Our services are not directed toward children under the age of 13, and we do not knowingly collect personal information directly from children without appropriate consent. A parent or legal guardian may submit health-related information on behalf of a child as described in Section 5.
13. Business Transfers & Organizational Changes
In the event of a merger, acquisition, restructuring, partnership, organizational transition, or transfer of assets, information collected through our services may be transferred as part of that transaction, subject to applicable law.
14. Changes to This Privacy Policy
We may update this Privacy Policy from time to time. Any updates will be posted on this page with a revised effective date. Continued use of the website after updates constitutes acceptance of the revised policy.
15. Contact Us
If you have questions about this Privacy Policy or how information is handled, please contact:
The Smilo Foundation, Inc. hello@smilofoundation.org